I'm sad and frustrated today because I'm getting more and more uncomfortable, and there's nothing I can do about it.
If I felt sick because I ate too much, I could abstain from food and feel better. If I felt fat, I could diet. If I were hungover, I could drink water, pop a Tylenol and wait it out. If I hurt myself, I could ice the affected area, take it easy and the injury would get better.
But I'm filling full of ascities (fluid in my abdominal cavity), which is making me very uncomfortable, causing pain in my back and ribs, and decreasing my lung capacity. Short of taking a trip to Emergency or the cancer clinic to get my abdomen drained, all I can do it sit back and watch my body expand. Every once in a while, a tumour or the ascities will hit a nerve and make pain shoot down my legs or in my abdomen.
Diane, in true spa style, gave me a massage last night. She poured oil on my poor, aching body and found a few wicked knots on which to work. When I complained my lower back hurt, she went to work on relieving some of their tightness. I'm sure it's from carrying around all that extra fluid. The discomfort and my size is similar to being pregnant, without the benefit of a baby at the end.
It was good to be at the spa and hang around with Diane and Pete this weekend. They reinforced that I only have to be me with them, and don't have to put on a brave face. They're happy having sad Tina, angry Tina, quiet Tina, sore Tina, happy Tina or warrior Tina.
I was sad this weekend. This is the first time in ages where I didn't stop for a moment while in Port Franks with an excited, gleeful feeling and say, "Wow, I'm really happy." I know I'll get there again, but it feels so damn unfair right now.
I'm not quite at warrior Tina yet, either. Maybe that state of being will change when I have some timelines. I STILL haven't heard from the doctor's office in Hamilton for my consultation about the clinical trial. Let's get on with it. The sooner I can meet with the doc, the sooner we can start blasting these damn cancer cells. Once that happens, the fluid will also dissipate. Maybe with dates and an action plan, my fighting spirit will re-emerge.
I also feel extremely tired. Despite sleeping in today - something I rarely do - I feel worn out. I think my body is doing its best to fight the cancer. Of course, lugging around the extra weight from the fluid probably doesn't help.
But I did swim in the lake yesterday, which is something I wanted to do before I started chemotherapy and the activity becomes verboten. I may try to squeeze in another beach visit before treatment starts.
Although, I've already decided I'm not going to put my life on hold as much this summer. I'm going to do whatever I can do. What is swimming in the chemically-balanced pool in my backyard going to do? Kill me? Ha! I didn't do things last summer in anticipation that I'd beat the cancer and do them this summer. Look where that got me.
So I'll continue to trudge (some would argue waddle) along with my rapidly filling body and do the best I can. I'll also try to gear up for the next fight of my life. It's all I can really do right now.
Tina
honey,,, sorry, I have to call Bullshit that you never experienced a gleeful happy moment... when that wave crashed over us when Mikey took the shot and we couldn't stop laughing,,, or when I had the piece of snot hanging out of my nose... C'MON MAN... life doesn't get anymore gleeful than that!! hahah I couldn't have PLANNED that snot at a more appropriate time!!
ReplyDeleteAnd,,, I only want you to be you,, whether it's scared, lonely, depressed, pissed, angry, full of hate or full of glee,,, I want you to feel as though you never have to put on a Warrior fighting face,, you're allowed to be who you are that day...
It's memories that we hold of moments in life that get us to the next phase of our being. Come out next weekend,, the weather is supposed to be FABULOUS!!
(I'll try not to bruise you next message,,, no promises though!! hahaha)
aka helMUT
ReplyDeleteTina, I am with you every step fo the way
ReplyDeleteLOL, I like Diane, and your cheerleader friend that calls you "Dude"- that's a term of endearment I use a lot! We all need friends like them.
ReplyDeleteDo all you can while you can. Swim in the pool, or the ducky river or lake water. I couldn't go in last year either, but I can now!
Hang in there, T. Easier said than done, I know, but now you're a PRO. You did it once before, so that makes you an expert! Like me! Let us help you any way we can.
Love
Pateeta,, i was speaking with Tina this past weekend about you and how your cancer came back after 2 months,,, THAT SUCKS. I also love the way you sign off daily.
ReplyDeleteLove. You rock chick,,, keep strong